Mom wins in fight with pharmaceutical company

>>> IT IS A HUGE VICTORY. >> LOCAL MOM TAKES ON A BIG PHARMACEUTICAL COMPANY AND WINS. REWARD HER SON GETS TO STAY ON MEDICATION THAT LET’S HIM LEAD A NORMAL LIFE DESPITE CANCER DIAGNOSIS. THE FAMILY GRATEFUL THE SON CAN CONTINUE HIS CURRENT TREATMENT FOR STAGE 4 CANCER. >> THE DECISION ON PILL PRODUCTION CUT OFF THE SUPPLY. WORRIED ABOUT HIS FUTURE. THANKS TO HELP OF US THIS FAMILY IS CELEBRATING. >> I FOLLOW JOSH CANCER FIGHT FOR SEVERAL YEARS. IT WAS JUST A COUPLE WEEKS AGO. I REPORTED JOSH WAS GOING TO HAVE TO END THE CLINICAL TRIAL HE IS ON BECAUSE THE DRUG COMPANY STOP MAKING ONE OF THE PILLS. WELL TONIGHT GREAT NEWS SHARE. NEW SUPPLY OF THE DRUG HAS BEEN FOUND. >> WARM EMBRACE BETWEEN MOTHER AND SON. JENNIFER IS THRILLED TO HAVE HER SON JOSH HOME FOR THE SUMMER. AND ON THE SAME DRUG THAT HAVE KEPT THE CANCER IN CHECK SINCE OCTOBER OF 2015. >> VERY EXCITED TO FIND OUT THAT WE HAVE ENOUGH SUPPLY FOR ANOTHER YEAR. >>Reporter: JOSH DIAGNOSED WITH STAGE 4 MELANOMA WHEN 16. HE’S UNDERGONE SURGERY IN DIFFERENT TREATMENT. SOME WITH VERY HARSH SIDE EFFECTS. >> TO BE HONOR WHAT I AM NOW IS KIND OF A BLESSING FOR ME TO BE ABLE TO FEEL AS GOOD AS DO I RIGHT NOW. >>Reporter: JOSH IN A CLINICAL TRIAL THAT HAS HIM TAKING 3 DIFFERENT DRUGS. 2 FDA APPROVE THIRD ONE THAT IS INVESTIGATIONAL TRIAL WAS TO STOP APRIL 30 BECAUSE THE DRUG IS NO LONGER PRODUCED BY THE COMPANY AND ANY EXISTING SUPPLY WOULD BE EXPIRED. PATIENCE STILL TAKE THE TWO FDA APPROVED BILL. CONCERNING CHOICE FOR JOSH. >> BEING ON THE TWO PILL CANS HER GONE TO MY BRAIN SO WONDERING WITH THE REMOVAL OF THIS PILL IF THAT COULD BE POTENTIAL TO HAPPEN AGAIN AND THAT’S SOMETHING THAT IS IN THE BACK OF MY MIND. >> JOSH MOM FOUGHT HARD TO KEEP HER SON IN THIS TRIAL AND ON THE 3 DRUG INCLUDING CALLING LOCAL OFFENDER TO GET THE STORY OUT. >> I FOLLOW JOSH CANCER FIGHT. >> ABSOLUTELY THIS IS MY SON AND I THINK ANY MOTHER IN MY SHOES WOULD DO WHAT I AM DOING. >> THANK YOU SO MUCH CHANNEL 4 AND KAREN FOR DOING THE STORY AND ALWAYS BEING THERE FOR US AND FOR JOS >> HE SAYS DISCONTINUED MANUFACTURING THE DRUG IN 2015 DUE TO THE LOOK OF CLIP CAL BENEFITS OBSERVED IN EARLY STUDIES. AFTER LOCAL 4 STARTED ASKING ABOUT THE INVESTIGATIONAL DRUG IN THE TRIAL IT FOUND ADDITIONAL LIMITED SUPPLIES OF THE DRUG WHICH COULD ALLOW MORE TIME TO DETERMINE AN APPROPRIATE LONG-TERM TREATMENT APROACH FOR THE PATIENT. FOR JOSH IT MEANS HE CAN STAY ON THE 3 DRUG FOR ANOTHER YEAR. >> THAT’S HUGE. AT THE ABLE OF 16 WE HAVE NO IDEA OF IF HE WOULD EVEN BE HERE TODAY. THE TO BE ABLE TO HAVE THIS NOW THE FOR HIM TO HOME RIGHT NOW FOR THE SUMMER THAT I’M THANKFUL FOR TO HANG OUT WITH US AND GO ON THE BOAT AND BE WITH US FOR DINNER TIME. WORKING FULL-TIME JOB. >> FAMILY GRITFUL TO HER FOR FINDING MORE OF THE DRUG. >> THANK YOU. THANKS FOR LISTENING. >> THANKS FOR WASHINGTON NEEDED TO GET DONE TO SUPPLY US FOR THE NEXT YEAR. >> CELEBRATING JOSH CONTINUED HEALTH BUT FOCUS ON THE FUTURE, TOO. >> YEAR WILL GO WHICH AND JOSHUA IS GOING TO CONTINUE DOING WELL AND CONTINUE LIVING LIFE AND WE NEED THE NEXT STEP. WE NEED TO KNOW WHAT IS NEXT. WHAT ONCE THE SUPPLY IS GONE THEN WHAT? BECAUSE THE TYPE OF DRUG THIS IS WOULD I HOPE THAT THIS COMPANY BECAUSE OF THE NO LONGER WILL MAKE IT. THEY HAVE TO HAVE SOMETHING IN THE BACKGROUND SOMETHING THAT I AM HOPING THEY WILL BE ABLE TO PROVIDE FOR US. IF NOT THIS COMPANY THE MAYBE ANOTHER COMPANY. >> JOSH THANKFUL THE CANCER FIGHT IS HELPING OTHERS. ONE OF 6 PEOPLE TO CONTINUE TAKING THE INVESTIGATION DRUG. >> FAMILY MEANS A LOT THAT I CAN HELP OUT MORE THAN JUST MYSELF. >> WE CHECKED BACK WITH THE COMPANY SAYS IT DOESN’T PLAN TO MANUFACTURE THE DRUG AT THIS TIME DUE TO MINIMAL EFFICACY IN EARLIER CLINICAL TRIAL. HE’S CONTINUE TO GO WORK WITH THE NATIONAL CANCER INSTITUTE AS THEY DETERMINE THE BEST SOLUTION FOR THIS PATIENT AND OTHERS ON THE TRIAL. JOSH AND DOCTOR ARE ALREADY

Leave a Reply

(*) Required, Your email will not be published